BASAK SAHIN Basak has been involved with the SABC Research Project since the beginning, as a research technician at the Molecular Phenotyping Core of UBC Centre for Heart Lung Innovation at St. Paul’s Hospital. Read Basak’s spotlight story on the SABC Research Project HERE.

 

---

 

Beyond Breathless

Check out this documentary on A&E.

A documentary featuring Queen Latifah & NY Yankees legend Bernie Williams who both lost a parent to interstitial lung disease. Airing on Rare Disease Day 2/28 @12PM EST

---

CityNews Feb 17, 2021

Organ transplants rebounding from pandemic

There are 737 people waiting for an organ transplant in B.C. but Beth Miller is no longer one of them. David Zura hears her story and why those still waiting may have renewed hope during the pandemic. This story is about one of our SABC board members, Beth Miller.

Watch the CityNews Video

 

---

 

Dealing with COVID & Vaccines

A Canadian Scleroderma Series Panel Discussion

The discussion was held on February 11, 2021 and now the video is available to you. 

Featuring Panelists:
Dr. Janet Pope  –  Dr. Mark Larche  –  Dr. John Varga  –  Maureen Sauve

Moderator:
Dr. Brett D. Thombs

 

WATCH THE VIDEO HERE

 

One item in the video was reference to the American College of Rheumatology

Guidance Related to the Use and Timing of Vaccination and Immunomodulatory Therapies in Relation to COVID-19 Vaccination Administration in Rheumatoid Arthritis  Patients

You can have a look at COVID-19 Vaccine Clinical Guidance Summary

NOTE, PLEASE MAKE SURE YOU DISCUSS THIS WITH YOUR DOCTOR.

 

---

 

Wound Care

We have some videos available from our Wound Care Webinar.

---

Scleroderma and the COVID vaccine.

Scleroderma Foundation in the United States pulled together a talented group of experts and have provided a page with information and recommendations on COVID-19 vaccines. Read what some of the top experts in the world have to say: READ HERE

For the latest issue of Sclerodata CLICK HERE

---