Contact Rosanne: bike4_2@telus.net     604.619.4820

Thank you Global for your support!

June is Scleroderma Awareness Month across Canada and the United States. June 29th is World Scleroderma Awareness Day. This is a special time to educate and raise public awareness about this little-known and often misunderstood orphan disease and stress the critical importance of funding research to find a cure and support quality of life for people living with scleroderma.  

One of our objectives is to encourage as many people as possible to learn more about this disease which affects over 20,000 Canadians. SABC holds awareness and fundraising events throughout the province with our “Moving to Cure Scleroderma” campaigns.

“A mile is still a mile no matter how long it takes!” Jen’s personal campaign.

I was diagnosed with the life-threatening and rare disease called Scleroderma, which quickly took over my body and left me unable to run, something that had always been a huge part of my life. After finding a drug therapy that has helped to stabilize my lungs and significantly improve the quality of my life, I have set a goal to run a half marathon in June 2023. My journey has been challenging, as I’ve had to adapt my training to my new body and its limitations, but I’m determined to persevere and inspire hope for others living with this disease. Despite all the physical and emotional challenges, I remain positive, hopeful, and courageously resilient. To read more about my journey, please CLICK HERE To support Jen’s Conquer the Lake Scleroderma Run CLICK HERE

Virtual Community Connections – Various Topics and Discussions

For more information and registration CLICK HERE

What is Scleroderma?

Scleroderma (systemic sclerosis or SSC) is a little known and incurable autoimmune disease, a condition in which a person’s immune system turns against itself by producing antibodies that attack its own tissues (i.e. autoantibodies).

Scleroderma affects approximately 2,300 people living in BC and 22,000 Canadians. Scleroderma is characterized by an overproduction of collagen and damage to the blood vessels that causes excessive scarring within the various organs.  This imbalance leads to a hardening of the skin (fibrosis) and an alteration of the affected organs. Moreover, in most cases, scleroderma limits the motor skills and dexterity of those affected and causes great physical and psychological suffering since it produces disfiguring appearance-related changes.

The skin, digestive system, heart, lungs, and kidneys are the organs most commonly affected by the potentially serious complications of scleroderma, which leads to significant decrease in quality of life and life expectancy. Read more

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With your support, we can fight scleroderma!

Last updated : 2021 April 24