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June Thank you to all those who participated in our 2023 Annual General Meeting and Conference! 
Stay tuned for videos & resources from the event. 

 


Virtual Community Connections – Various Topics and Discussions

Date : Monthly Time : 7 :00 – 8 :00pm PDT

 

More information and registration will be coming.

 


 

What is Scleroderma?

Scleroderma (systemic sclerosis or SSC) is a little known and incurable autoimmune disease, a condition in which a person’s immune system turns against itself by producing antibodies that attack its own tissues (i.e. autoantibodies).

Scleroderma affects approximately 2,300 people living in BC and 22,000 Canadians. Scleroderma is characterized by an overproduction of collagen and damage to the blood vessels that causes excessive scarring within the various organs.  This imbalance leads to a hardening of the skin (fibrosis) and an alteration of the affected organs. Moreover, in most cases, scleroderma limits the motor skills and dexterity of those affected and causes great physical and psychological suffering since it produces disfiguring appearance-related changes.

The skin, digestive system, heart, lungs, and kidneys are the organs most commonly affected by the potentially serious complications of scleroderma, which leads to significant decrease in quality of life and life expectancy. Read more

 

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Last updated : 2021 April 24


 

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