SAVE THE DATES

The teams are well into planning for this year’s June Awareness and Fundraising events across the province. Look at all of the locations SABC for this year.

MOVING TO CURE SCLERODERMA 2022

Check here for the latest details.

SABC Support Group Meet-up

Tuesday, June 7, 2022 @ 7pm

Come Zoom With Us!

Bring your favourite beverage and let’s get to know each other.

Together we can build a supportive scleroderma community!

Register in advance for this meeting

CLICK HERE TO REGISTER

After registering, you will receive a confirmation email containing information about joining the meeting.

If the saying is “a picture says a thousand words”, then a recorded video must really speak volumes. But who needs a thousand when just two will do?

Click here to check out St. Paul’s Foundation Thank-You video to all of us who support the good work the group does there for scleroderma patients, the scleroderma clinic and the SABC research program.

CLICK HERE to find out what the BC CDC is saying about the 3rd dose for scleroderma patients.

What is Scleroderma?

Scleroderma (systemic sclerosis or SSc) is a largely misunderstood chronic disease affecting about approximately 22,000 Canadian and five to six times more women than men are affected by this disease.

Scleroderma is an autoimmune disease, a condition in which a person’s immune system turns against itself by producing antibodies that attack its own tissues (i.e. autoantibodies).

This disease is derived from the Greek words “skleros” (hard) and “derma” (skin) and is characterized by progressive skin hardening.

Nicknamed “the disease that mummifies” scleroderma is diagnosed in thousands of Canadians. It is characterized by an overproduction of collagen and damage to the blood vessels that causes excessive scarring within the various organs.  This imbalance leads to a hardening of the skin (fibrosis) and an alteration of the affected organs. Moreover, in most cases, scleroderma limits the motor skills and dexterity of those affected and causes great physical and psychological suffering since it produces disfiguring appearance-related changes.  Read more

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Every donation counts

With your support, we can fight scleroderma!

Last updated : 2021 April 24